Plaquenil question? lupus?
i am in the process of being officially diagnosed with lupus. 4 days ago, i saw my Rheumy for the first time and while we wait for some info from my cardiologist, he prescribed me plaquenil (200mg a day). after some research, it seems it really helps people with their joint pain. i have joint pain but it isnt too...
Asked by Siu Ruscitti 4 months ago.
i am in the process of being officially diagnosed with lupus. 4 days ago, i saw my Rheumy for the first time and while we wait for some info from my cardiologist, he prescribed me plaquenil (200mg a day). after some research, it seems it really helps people with their joint pain. i have joint pain but it isnt too bad. i can deal with my joint pain. i don't really find taking plaquenil is worth it for me at the present time. i don't want to deal with the side effects of the medication. should i take it or wait? i'm the type of person who dislikes taking meds unless its 100% necessary. my joint pain is tolerable so i don't see the point in taking meds for it right now. Answered by Deetta Berish 4 months ago.
Plaquenil takes 4 to 6 months to reach full therapeutic strength in the blood stream. It helps prevent flares (which cause joint pain and sometimes organ damage) and reduces sensitivity to the sun. It's not like taking ibuprofen for pain. It suppresses the damaging activity of your immune system. Take it. In lupus, you can have organ damage going on with absolutely no symptoms until it is serious. So, weigh the possibility of permanent organ damage vs. the side effects of plaquenil. I have been on it for 10.5 years. Answered by Donnette Harrer 4 months ago.
I am so afraid to take plaquenil for lupus treatment! any natural cure?
Does anyone has an experience with plaquenil? or some one knows a natural way to cure lupus? I am currently taking oil fish, cellfood and recovery( for joint pain) and multi-vitamins.I am 30 yrs and was diagnose 8 months ago, no internal organs involves and the only symptoms are fatigue and joints...
Asked by Shantay Winne 4 months ago.
Does anyone has an experience with plaquenil? or some one knows a natural way to cure lupus? I am currently taking oil fish, cellfood and recovery( for joint pain) and multi-vitamins. I am 30 yrs and was diagnose 8 months ago, no internal organs involves and the only symptoms are fatigue and joints pain. Please help if you have experience plaquenil as treatment or someone else. I am afraid of side effects ( affects lung, kidney, bones , eye etc.) it help now but causes you trouble later on. I am going to see my rhumatologist tomorrow but I haven't decided yet if i am going to start the treatment. thanks Answered by Korey Peets 4 months ago.
Unfortuantely you have an 'old school' doctor. Plaquenil is an old medication used for Lupus. There are so many other meds out there right now that perform much, much better. Especially if you don't have organ involvement yet. I would change rheumatologists or at the very least get a second opinion. Cellcept is the most recent drug to be used for SLE (or Myfortic...it's time released cousin). This drug was initally used for organ transplant patients but seems to do a nice job in keeping the immune system in check. Most recently Rituxan (a three time IV dose) has been used if the Lupus becomes more aggressive. There are some side effects of Rituxan (it was initially only used for Rheumatoid Arthritis), as it is a very mild 'chemotherapy' drug. But if your Lupus becomes aggressive then this might be another alternative. There are several drugs in Phase III trials. Prednisone is the old tried and true drug to treat severe inflammation (it also has a bit of immuno-suppressant positive side effect) but this drug has many, many side effects over a long course of treatment. My advice would be to ask your rheumatologist why he/she has decided on Plaquenil. Ask about the other drugs that I have mentioned. If they aren't well versed in them then you have a doctor that hasn't kept current in their training. As far as herbal remedies, be careful here. Many of the so called Lupus cures are bogus and can actually hurt you. The last thing I'll mention to you is for you to ask if you've been tested for Antiphospholipid Syndrome (again if your doctor doesn't know what this is then you really need to run from their office). APS is a 'piggyback' disease that affects up to 50% of Lupus patients yet only 25% of them are actually tested for it. It is a blood clotting disease and can be diagnosed with a simple blood test. Don't just assume that your doctor has tested for this disease. If you aren't properly treated (ie Warfarin..a blood thinner) then you have an extremely high risk of a stroke or embolism from a blood clot. Many, many Lupus patients that I have talked to haven't even heard of APS...many experienced doctors that treat Lupus feel that many of the deaths attributed to it are actually caused by APS...GET CHECKED!!! Answered by Jong Valdespino 4 months ago.
There is no cure for Lupus, only treatment to help ease the progression of the disease. You should take the prescriptions prescribed by your doctor. Alot of quacks online will try to tell you they have this or that vitamin or whatnot to help cure Lupus, but remember there IS NO CURE. Answered by Elisha Mahfouz 4 months ago.
Ginger helps indirectly to relieve pain by reducing inflammation and by lowering the body's level of natural pain-causing compounds. Flaxseed contains omega - 3 fatty acids which can decrease lupus-induced inflammation. A Complete Multivitamin Mix including antioxidants helps to improve overall health. Flaxseed contains omega - 3 fatty acids is important in supporting the natural treatment of lupus. Please make sure to talk very seriouly w/your rhemotologist before refusing his recommended treatment. GOOD LUCK Answered by Marielle Amistoso 4 months ago.
hey I'm 19 years old and have been taking Plaquenil for almost a year now. I have not had a single side effect. I've had horrible side effects from other medicines like prednisone, and other immunosupressants. My mom was weary of me going on it, but my immunologist and rhumatologist both said that side effects including eye trouble was extremely rare. Plaquenil has been a miracle drug for me almost. I could tell after a week that it was helping. Email me if you have any more questions! Answered by Nicolette Ary 4 months ago.
Lupus is a very serious disease so please follow your doctor's advice and not go the "natural" route. Answered by Gwendolyn Kirklin 4 months ago.
How long does it take for plaquenil to get rid of the lupus butterfly rash?
I've had discoid lupus for several years with the classic butterfly rash. However, it has progressed to systemic lupus with joint involvement. Doctor started me on plaquenil 400mg a day...he told me it takes a while to take affect, but I was just wondering how long until I start to notice the red rash going...
Asked by Leonora Gardenhire 4 months ago.
I've had discoid lupus for several years with the classic butterfly rash. However, it has progressed to systemic lupus with joint involvement. Doctor started me on plaquenil 400mg a day...he told me it takes a while to take affect, but I was just wondering how long until I start to notice the red rash going away? Any help would be much appreciated! Answered by Marx Czekanski 4 months ago.
The plaquenil may or may not make the butterfly rash go away. There is no way to predict. Typically plaquenil takes 4 to 6 months to take full effect in controlling systemic lupus. It makes you a little less photosensitive as well. Please make sure you have a baseline field of vision test. It is just precautionary, but you do need a baseline. Eye problems with plaquenil are extremely rare, but you do want to be safe. Answered by Jamie Karbowski 4 months ago.
Plaquenil side effects?
Please, people who are taking this prescription only, please.What side effects are you experiencing and have you had much success with this drug? Why are you taking it? I am a Lupus patient and recently got prescribed Plaquenil in hopes that we will eventually be able to wean me off Prednisone.Thanks for...
Asked by Raul Varcoe 4 months ago.
Please, people who are taking this prescription only, please. What side effects are you experiencing and have you had much success with this drug? Why are you taking it? I am a Lupus patient and recently got prescribed Plaquenil in hopes that we will eventually be able to wean me off Prednisone. Thanks for all your answers! Answered by Alecia Slostad 4 months ago.
I have been on Plaquenil for almost two years and luckily I have had no side affects that I know of, however, with the number of meds I'm on, I may not be able to distinguish any effects. I can't say I have had much success as I still feel awful the majority of my days. I was trying to reduce the amountof meds I was taking in a single day, but, my primary Dr. did state that was not one I could eliminate. Take Care and Good Luck with your change. Robin Answered by Demarcus Folley 4 months ago.
major side effects. took plaquenil for four months, wish I never took it. nausea and no appetite began , sever abdominal pain. shortness of breath to follow, then light headed episodes. plaquenil im sure works for other but was too harsh for me. been off plaquenil for over 8 months, and still have symptoms. I have had every g.i. test and still have found no source of the pain. anyone else have similar experience? Answered by Paul Mayeaux 4 months ago.
I've been on it for about 2 months now... I have noticed that I have a loss in appetite.. No weight loss really though. Ummm I was nauseous for a period of time it was so weird... Other than that I'm tired .. Answered by Jeremiah Delawyer 4 months ago.
Issues with hydroxychloroquin AKA plaquenil side effects?
I am taking plaquenil and am experiencing short term memory loss and problems concentrating. Sometimes I mix up words while speaking. Like trying to say do you want a cookie and instead saying do you want a table. Has anyone else had these side effects?
Asked by Sherrell Cardero 4 months ago.
These are not reported side effects of Plaquenil and I have never heard of anyone on Plaquenil having these side effects. If you noticed these symptoms only after Plaquenil was begun, then it is certainly possible that it could be related since medications affect people differently. There are other causes for memory loss and speech difficulties. If this continues to be a problem, then discuss it with your doctor. Your doctor can evaluate you for other medical causes of memory loss if appropriate. Good luck. Answered by Greg Forro 4 months ago.
Plaquenil for RA?
I am on Plaquenil and Prednisone tablets currently for rheumatoid arthritis. I am being taken off of Prednisone in 3 weeks and am going to be taking strictly Plaquenil. Does anyone else take Plaquenil? If so, has this helped your symptoms? Has it caused any bad side effects for you? If so, which ones?
Asked by Angelica Amendola 4 months ago.
I have spondyloarthropathy (or spondylar arthritis), which has similar symptoms to RA but without the joint damage. I have flare ups and have spent days in bed, become depressed, etc due to the pain I was going through. I am now on plaquenil, sulfasalazine, and voltaren. The plaquenil took around 4 months to kick in, but now I feel like a different person. I have eye exams every 6 months to check for vision changes (it can affect your retinas). So far, so good, and I feel like a 40 something year old woman instead of a 90 year old (I'm 47). Best wishes. Answered by Lilia Schirm 4 months ago.
I was on plaquenil, methotrexate, prednisone combo for years. This was an effective combination for me but not as good as my current medication which is humira only. I am nearly symptom free with humira, and with the combo had frequent flares. I didn't have any side effects from plaquenil (which by the way is anti-malarial) but you need to see an opthamologist regularly because for some folks (rare) it can cause visual changes or even blindness, by leaving retinal deposits. I wish you luck, I have never heard of a plaquenil only regimen--- very unusual. I hope you have good luck with that--- if not ask your Dr. about the possibility of humira, enbril or remicade ---- these are amazing drugs and much easier ! Answered by Glady Dechamplain 4 months ago.
With Plaquenil you have to have yearly extended eye exams. Plaquenil may effect some aspects of your vision, but if you inform your optometrist they should know which test to run during your visit. Other than that, there are no bad side effects, but it does work!! Answered by Kiesha Sadbury 4 months ago.
I have a moderate case of RA, and I take Plaquinel. It sure has helped me. I haven't noticed any side effects, but that doesn't mean there isn't any, I just haven't noticed them yet. I'm taking Humira with Plaquenel, (albiet less Plaquenel,) and It really works. I have my days, as in cold weather, but this combination is working fine. You may talk to your Dr. about Humira. I think that eventually I will have to find something else, as I will develop an immunity to it, but in the meantime, I'll enjoy the relief it give me. Answered by Jeneva Schamberger 4 months ago.
Danger in taking Plaquenil and Prednisone if its not Lupus ?
My body is mimiking signs of Lupus heart probs high ANA sunlight sensitivity Dr is not sure its Lupus or not but wants me to start the above meds. My questions is : If its not Lupus at all; can these medications be harmful ? Thanks
Asked by Kaitlyn Dacy 4 months ago.
There are definite criteria to make a diagnosis of lupus (Systemic Lupus Erythematosis or SLE). If your doctor is unsure of the diagnosis, then he should refer you to a Rheumatologist, or at least discuss the case with one. A Rheumatologist specializes in the diagnosis and treatment of arthritis and auto-immune disorders - like lupus. SLE is not a disease to be taken lightly and some variants of the disease can result in kidney failure, psychosis and seizures, and death! Prednisone and Plaquenil, while not as dangerous as some other drugs, are nevertheless not to be taken lightly. Plaquenil requires regular eye examinations by an Ophthalmologist. The Plaquenil can build up in the retina and cause blindness!. Prednisone can cause a whole series of side-effects including reduced resistance to infections, osteoporosis, muscle weakness, fat accumulation, fragile skin, diabetes, cataracts, and shut down of your bodies adrenal glands. Then, you become dependent on it and the process of weaning you off and trying to get your adrenal gland back to working order can be a long and tedious process. If your doctor is not a Rheumatologist, I personally would demand a referral to a Rheumatologist. I would want the best and most skilled physician to take care of me if I were developing SLE. Answered by Ligia Rufi 4 months ago.
Both medications carry with them side effects. Prednisone can cause osteoperosis and necrosis (death of the bone) problems with the eyes (ie glaucoma), higher infection rate, sweats/chills, weight gain (especially in the face..ie 'moon face') and insomnia. There are other side effects but they are less prevailant. Plaquenil can cause problems with eyesight, blood issues, liver and kidney damage. Unfortunately, if you do have Lupus, prednisone is your best choice to knock out the symptoms quickly. It should be given in a higher dose initially and then tapered back. It is important to taper from high doses as soon as possible. You must also make sure to taper EXACTLY as directed by your doctor as not doing so can cause serious issues. If you are having joint pain/inflammation and kidney issues then you should take the prednisone now and continue in confirming your diagnosis of Lupus. As for the plaquenil, this is an 'old school' treatment of Lupus. Most rheumatologists who are educated in the current treatments of Lupus do not use this medication any longer. A better and more effective treatment is Cellcept (an anti rejection medication initially used for people receiving organ transplants). Cellcept seems to be much better tolerated in the body, has fewer side effects and actually helps keep flare ups under control. Whether you take plaquenil or Cellcept it is important to actually be diagnosed with Lupus first before taking these medications. These are not preventative medications and shouldn't be taken lightly as the side effects could outweigh the benefits if you do not, in fact, have Lupus. I'm wondering why your doctor hasn't actually diagnosed you yet. Have you had an ANA test. How about a creatine clearance/24 hour urine test? These tests can help with a more accurate diagnosis as there is no actual Lupus test. I wish you the best. If you have any more questions please feel free to ask. Answered by Marylou Deamer 4 months ago.
Hi, I have lupus. I take Plaquenil. It has kept my lupus at bay for three years now. The prednisone suppresses your immune system and causes havoc to your body, so you don't want to take it forever. My friend was on long-term prednisone after an organ transplant (not-lupus related) and she was blown-up and swollen like a balloon. It scared me at first to think of vision problems with Plaquenil, but I found a good eye doctor who checks my eyes every 6 months and tells me what to watch out for. I take my plaquenil (or Hydrocloroquine - generic) at night because it gives me diarrhea. I take Advil once a day. I also take Wob-enzyme and that helps me. Good luck! Answered by Petronila Witwer 4 months ago.
they do have their side effects but it doesn't matter whether you have or don't have lupus, its all the same. i hope that you don't and you get things figured out. Answered by Suellen Goertz 4 months ago.
Started taking Plaquenil for Lupus and now I can't sleep. Any ideas?
As soon as I started the pills, the same day in fact, I began laying awake in bed at night. When I do sleep, upon waking it feels like I never slept. Is this a common side effect and will it subside with time? I read the insert that came with the prescription and it didn't mention insomnia.
Asked by Lawrence Perno 4 months ago.
hello hun, my daughter, takes plaquenil as well, she suffers the same, we kept going back to the doctors, in the end, he gave her a drug called, amitriptyline 10mg,now it says its for depression, but it is only mild depression tablet, but it is also a sleeping pill, she takes it 3 hours before bed, now she sleeps, not all the time, but it helps, also i take my daughter, for ackupuntior, if thats spelt write, but by god its helped her try and try that,she feels, much better when she goes Answered by Anglea Saadeh 4 months ago.
Plaquenil doesn't usually cause insomnia. It is most likely something else, such as prednisone (if you're taking it) or anxiety. Insomnia is a common complaint for people with Lupus, some as a result of the steroids and some from general stress of the disease. Lupus is a difficult diagnosis to handle and can really make it difficult to fall asleep. You can go a couple different routes in treating your insomnia. I would suggest trying to eat early (nothing after six pm), watch tv for an hour or so to unwind and then read until you feel tired. Do not exercise before bed as this elevates the heart rate can make it more difficult to sleep. Many sleep studies have been done on this and all of them say that exercise before sleep causes insomnia. Also refrain from alcohol. The second route you can take if you've tried the rest but still have trouble sleeping. You can get a sleep aid prescribed by your doctor. Use it sparingly as it can become addictive however if you cannot fall asleep, sometimes just getting into the routine will help and this is when medications come in. I wish you the best of luck! Answered by Rosetta Bushard 4 months ago.
Plaquenil does not cause sleep disruption. I work with lupus patients and have never heard of that. We do get insomnia, but not from plaquenil. Predisone can do that big time especially if you take it in the evening. More than likely it is anxiety and your brain that are keeping you awake. Here are things to try: 1. Develop a bed time routine. An hour before bed, take a warm bath with lavendar (the baby bath stuff is good), have a light snack, turn off the tv, get off the computer, read. At bed time, put on quiet ambient music very softly. 2. Surrender to the bed as if you were a child relaxing in the arms of its mother. 3. Do progressive relaxation. Tighten feet, release. Tighten lets, release, etc all the way up to your head. 4. Follow the breath. Count 4 on inhalation and 4 on exhalation. If you think, let it go like a bubble and get back to counting. 5. Each time you take the plaquenil think "I am thankful that I live in a time and place where I can have this medication to control my lupus." 6. Use the serenity prayer God grant me the serenity to accept the things I cannot change The courage to accept the things I cannot change and the wisdom to know the difference. You have lupus, it does not have you. You are not your illness. Lupus folks often have sleep issues. Try the things I mentioned. You will be OK. I am a grandmother with lupus with major organ involvement. I have been where you are and much worse. You will be fine Answered by Aleida Neikirk 4 months ago.
started plaquenil lupus sleep ideas Answered by Latasha Bevell 4 months ago.
3 Steps to Cure Insomnia Forever! Answered by Tammy Brucki 4 months ago.