Kidney failure and OctreoScan?
Will the gamma emitting isotope cause any further damage to the kidneys?
Asked by Dalton Schram 1 year ago.
This is something that you should ask your urologist or nephrologist. Answered by Shonna Milsaps 1 year ago.
Should I get an octreoscan done for carcinoid syndrome?
Hi I just want to hear what you would do if you were me. I have been having really bad flushing episodes for the past 4 years and getting worse every year. they get so bad and sometimes they just stay all over my face but most of the time they will just stay to one side of my face. they burn so bad as well like a...
Asked by Scarlett Rawe 1 year ago.
Hi I just want to hear what you would do if you were me. I have been having really bad flushing episodes for the past 4 years and getting worse every year. they get so bad and sometimes they just stay all over my face but most of the time they will just stay to one side of my face. they burn so bad as well like a hot stove sitting on my face. so the flush will not only go on my face but under my chin and it looks horrible. I also have several allergies to foods and medications and my doctor did the 5hiaa test on me and the chromogranin a test both came back normal but my doctor wants me to go for the octreoscan and im scared cause they inject you with radioactive dye and i am afraid cause i have fears of certain things going into my body from my allergies. also i get bad anxiety and have to lay for 2 hours in the machine. do u think its worth having the test done if my only symptom is flushing? Answered by Debi Cossio 1 year ago.
I think you should, but I also think you should discuss your concern with your doctor, perhaps they can ease your fears and help you understand more about the dye. Food allergies suck, man. Allergies in general suck. I have had the dye in me, two different kinds, and no problems, luckily. I don't know much about the dye, though, so definitely ask your doctor. Answered by Josiah Biorkman 1 year ago.
Frustrated about Carcinoid Cancer?
I was diagnosed with carcinoid cancer in Oct. 2010. This diagnosis was reached after the swelling of one of my Lymphnodes & then removal. The problem is the OCT test shows that their is an area in my stomach that has lit up however all other tests ie. endoscropy,coloscopy,cat scan, MRI & lastly i had a camera...
Asked by Simone Nott 1 year ago.
I was diagnosed with carcinoid cancer in Oct. 2010. This diagnosis was reached after the swelling of one of my Lymphnodes & then removal. The problem is the OCT test shows that their is an area in my stomach that has lit up however all other tests ie. endoscropy,coloscopy,cat scan, MRI & lastly i had a camera swallowed into my lower intestines. All tests were negative. I am wondering has anyone else experienced this. Any reccomendations? Answered by Zandra Mullinex 1 year ago.
Dear LInda, Your experience with neuroendocrine cancer mirrors what many of us deal with. This rare cancer can hide very effectively. Some have referred to it as the Harry Potter cancer with an Invisibility Cloak! I was diagnosed in 2006 as a result of a biopsy of a liver lesion found during a gallbladder removal. I went through many of the same tests you did. However, most of my neuroendocrine tumors were found during an exploratory laparotomy surgery and many were located on the outer surface of organs, and therefore would not have been seen on endoscopy, colonoscopy or the little camera pill, OR they were too small to show on the scans OR they were hiding behind an organ that masked it from scans. Only one of my tumors showed up on a CT scan. During the exploratory it was found that I was loaded with tumors throughout my abdominal cavity with my primary located in the small intestine (was actually a "string of pearls"). Thankfully I had a surgeon that was careful to remove anything and everything he could find that was diseased. Please note that because a neuroendocrine tumor is small does not mean it cannot do much damage. They can secrete hormones that can wreak havoc in your body and they can metastasize to other locations. Though normally viewed by most doctors as slow growing, neuroendocrine tumors can be aggressive. Surgery is usually the first line of defense and there are medications that can give you a great quality of life and an extension on your "expiration date". Please see the websites below for additional information about this disease and above all, get yourself to an expert in the field...preferably one with many decades of work with neuroendocrine tumors and one who sees hundreds of NET patients a year. You need a detective doctor on your case who has LOTS of experience in dealing with this rare cancer. A local oncologist usually does not have enough experience with neuroendocrine cancers to adequately manage the disease. Though the "experts" may be at a distance from your home, most are willing to work with your local doctors to make sure you get the best treatment and monitoring plan! You have just begun your journey with this rare disease, so also check out these sites for support groups in your area! The information you can gain from others who have walked in your moccassins will be invaluable and may save you from some of the missteps in diagnosis and treatment that many of us endure. Best of luck, keep the faith and stay proactive!!! Dianna Carcinoid Cancer Foundation: www.carcinoid.org Caring for Carcinoid Foundation: www.caringforcarcinoid.org/ The NET Alliance: www.thenetalliance.com For more links to information: www.heartlandcarcinoids.org/neuroendocri... Answered by Raylene Garlitz 1 year ago.
Hi, what a nightmare this has to be for you. I actually had to look up carcinoid cancer to find out more about it. My suggestion is to still talk to your oncologist and find out what he/she has to say, or even request to talk to the radiologist who read your test. There has to be an answer. What I do know is if you had a CT scan/MRI, spots can show up that are nothing more than inflamed areas. Don't give up without getting answers that you're satisfied with. Answered by Kenyetta Partelow 1 year ago.
surgical treatment can thoroughly treatment carcinoid maximum cancers (or neuroendocrine tumors, the international well-being company's favourite call) see you later because it has no longer metastasized. The metastatic potential varies, reckoning on the universal internet site. If the tumor has metastasized, surgical treatment remains the 1st defence. As maximum carcinoids are sluggish turning out to be (Ki-sixty seven <2%) chemotherapy isn't an useful therapy. some oncologist will deliver stay tumor samples for testing against countless cytotoxic brokers. Sandostatin LAR (Novartis) or Somatuline Depot (Ipsen) the two manage carcinoid syndrome indications and have an anti-angiogenic result, slowing tumor improve. Peptide receptor radionuclide scientific care is the main more advantageous systemic therapy obtainable for metastatic ailment. this is not any longer yet obtainable in united states of america of america (different than for PRRT utilising Indium 111 in Huston, Texas - that's outrageously high priced, and not as useful as PRRT with Yttrium ninety or Lutetium 177 which the Europeans and Australians use). Louisianna State college revealed a study in 2005 recommending using black raspberry powder as a complimentary determination drugs for this is anti-angiogenic properties. The counseled on a daily basis dose is one gram in line with kilogram of bodyweight. high priced. extra moderen drugs decrease than trial are Pasireotide (Novartis) and RAD001 (Novartis). i desire to advise you connect the ACOR carcinoid checklist. Dr Eugene Woltering is a moderator and could answer any questions you have if the rest human beings can not. different checklist individuals will enable you to with determination the thank you to assist your indications. you additionally can seek the information for further information. appropriate needs and that i'm hoping this facilitates. digital mail me in case you have any questions. Answered by Danita Effner 1 year ago.
What is a octreotide scan?
Asked by Marco Verant 1 year ago.
OctreoScan (by Covidien) using Indium 111 has been the gold standard for somatostatin receptor scintigraphy for the last twenty years but has been replaced by newer technology, the Gallium 68 PET scan. These scans are used primarily for the detection of neuroendocrine tumors (carcinoid cancer). The OctreoScan involves an injection of Indium 111 with contrast. The patient is scanned four hours later, again at 24 hours and again at 48 hours. The Gallium 68 PET requires the one scanning procedure. Gallium 68 PET is a more sensitive scan and can detect smaller tumors than OctreoScan. Answered by Bernice Leinhart 1 year ago.
It is a radiology scan where you are injected with octreotide, which is similar to something that is naturally in your body called somatostatin. I've pasted the definition from the NCI's website and also the link below. Docs are usually looking for carcinoid type tumors (a relatively rare kind of cancer) when they do this, because those tumors kind of suck up octreotide/somatostatin and by doing so show up on imaging studies. There may be other reasons to do this test that I am not familiar with, though, so I wouldn't assume that you have cancer if your doc wants to do an octreotide scan on you! OCTREOTIDE SCAN: A type of radionuclide scan used to find carcinoid and other types of tumors. Radioactive octreotide, a drug similar to somatostatin, is injected into a vein and travels through the bloodstream. The radioactive octreotide attaches to tumor cells that have receptors for somatostatin. A radiation-measuring device detects the radioactive octreotide, and makes pictures showing where the tumor cells are in the body. Also called somatostatin receptor scintigraphy and SRS. Answered by Margot Protich 1 year ago.
Inflamed ileum NOT crohn's or colitis?
I had a colonoscopy and they took samples of tissue so I am pretty sure no tumors or crohns
Asked by Lorriane Zutell 1 year ago.
I have had abdominal pain for months now and been through a whole lot of tests to see what's wrong and recently, they found that my ileum was inflamed but stated that they do not know why. They specifically said it wasn't crohn's or colitis. Does anyone have any idea as to what this could be? Any help would be greatly appreciated as it is making my senior year (and all of life for that matter) difficult. Answered by Dan Hoel 1 year ago.
They would need to give you an OctreoScan or wireless capsule endoscopy (Pill Cam) to rule out a neuroendocrine tumor. Good luck. EDIT: Colonoscopy only examines the large intestine to the ileocecal valve. Answered by Dorine Disotell 1 year ago.
Definitely get a second opinion! Answered by Almeda Difalco 1 year ago.
Which radiation protection regulations pertain specifically to protection of the pregnant radiographer?
Asked by Sanford Mcfarland 1 year ago.
It seems like a grey area from my perspective as a patient. I have nuclear scans - Indium 111 Octreotide and Gallium 68 PET. The radioactive isotope is injected into a cannula in the arm. For the Octreoscan using In111 the clinician held a small lead shield which seemed quite ineffectual. With the Ga68 isotope, she stood behind a door-like free-standing shield and ran in and out of the room, with a worried look on her face, to give me iodine drinks. In the scan room she must help you to the machine and secure you in place. This is all done as quickly as possible. At the end of the procedure you are given a letter to cover you in case you set off radiation detectors at the airport on your way home. So I'm not qualified to answer your question - but I feel uneasy about the risk of repeat exposure to pregnant radiography staff. Answered by Keith Laurens 1 year ago.
No one is in the lead covered room someone is getting their scans or radiation treatments in. Answered by Rozella Previte 1 year ago.
What are the life expectancy ranges based on for carcinoid tumors?
I have a carcinoid tumor on my liver and am having it resected. I also have two lymphnodes near the liver which are showing signs of activity via an Octreoscan. If the tumor on the liver is removed and they remove the two lymph nodes that are showing positive for carcinoid are there any life expectancy guidlines...
Asked by Zella Helwig 1 year ago.
I have a carcinoid tumor on my liver and am having it resected. I also have two lymphnodes near the liver which are showing signs of activity via an Octreoscan. If the tumor on the liver is removed and they remove the two lymph nodes that are showing positive for carcinoid are there any life expectancy guidlines regarding a timeline? Is it possible it will never return again and I am cured? If it does come back can they just take it out again? If they keep taking it out will I live an otherwise normal life expectancy? Thank you! : ) Answered by Jackqueline Pahls 1 year ago.
Your question has about as many answers as their are folks with carcinoid cancer. You will probably have to look at this as a "chronic" disease, not a curable one right now. (But who knows, they are making miracles every day on treatments for cancers!) But for right now your best bet is to get to a carcinoid cancer expert FAST. There are myriad things a carcinoid expert can do to extend your life, but you will need to connect with them BEFORE your surgery. There is a great team at the Cedars-Sinai Hospital in Los Angeles, headed by Dr. Edward Wolin. They are top notch and would be a good place to start. You can also contact Dr. Eugene Woltering, BEFORE your surgery, to get all the information about what and where your surgeon can send LIVE TISSUE from your cancer so that it can be evaluated by experts that can help determine the kinds of therapy that would be best for you in the future. Check out these experts and more and how to contact them at the Carcinoid Cancer Foundation's website...www.carcinoid.org. You will also want to make sure that the surgeon and anesthetist are aware that carcinoid patients can have what is called "carcinoid crisis" during surgery...especially if they are "messing with your tumors". This life-threatening situation can usually be avoided by administering a protocol of octreotide intravenous injections before during and after the surgery. I am a carcinoid survivor and I can't stress enough the importance of getting to the experts right off. So many of us wish we has known to do that before our surgeries!! We would have saved ourselves a lot of grief! You can contact me by email if I can be of further assistance. Best of luck to you...Dianna B. Answered by Luci Frenette 1 year ago.
It fairly relies upon on the form of tumor and the p.c.. at which this is becoming. Has she seen an oncologist? i'm assuming so, because of the fact she become despatched abode with no longer something extra which would be completed. i might call the oncologist ( or any checklist she did see) and ask them her existence expectancy. that is not a chilly question, yet you (& your mom) would desire to prepare yourselves. you are able to tell them her functioning status and her deterioration and that they'd desire to be waiting to furnish you an estimation. My companion's father died of a techniques tumor 2 yearts in the past...10 weeks to the analysis. He, too become despatched abode with out any techniques of therapy. solid success to you and your mom. Make the terrific of this time along with her, you will in no way get to do it back. God bless you. Answered by Loise Vanvalkenbur 1 year ago.
Carcinoid Cancer Life Expectancy Answered by Pearline Cambria 1 year ago.
Different Cancer Diagnostic and Treatment Techniques?
I have a project due and I seriously cannot think of another technique!! I need to understand it pretty well and be able to show it with pictures or graphs, risks, purpose and all that good stuff. Can you please give me a technique?? Oh and it CANNOT be the following:BiopsyMRICat ScanUltra...
Asked by Tyrone Casarz 1 year ago.
I have a project due and I seriously cannot think of another technique!! I need to understand it pretty well and be able to show it with pictures or graphs, risks, purpose and all that good stuff. Can you please give me a technique?? Oh and it CANNOT be the following: Biopsy MRI Cat Scan Ultra SOund Mammogram Lumpectomy/Mastectomy Radiation-Beam Chemotherapy Radiation-Implant Please I need one just not any of the ones I listed. Thank you! Answered by Wendolyn Huewe 1 year ago.
How about a bronchoscopy? Laparoscopy? Wireless capsule endoscopy? Or perhaps an Octreoscan or Gallium 68 Octreotide PET scan? (Straight out of "House"). For treatment you can't beat peptide receptor radionucide therapy (PRRT). Answered by Lindsay Agurs 1 year ago.
From your National Cancer Institute; Endorectal ultrasound: An ultrasound probe is inserted into your rectum. The probe sends out sound waves that people cannot hear. The waves bounce off your rectum and nearby tissues, and a computer uses the echoes to create a picture. The picture may show how deep a rectal tumor has grown or whether the cancer has spread to lymph nodes or other nearby tissues. Two for the Treatment list. Hormone therapy. Aromatase Inhibitor therapy. Answered by Kattie Laurion 1 year ago.
colonoscopy is gold standard for colon cancer diagnosis. becomes routine in pts over 55 years old, especially in lieu of positive fecal occult blood test. hope this helps. Answered by Bettyann Gathing 1 year ago.
I found out that my "best friend" was avoiding me during my cancer treatments because of the radiation?
She had just had a baby when I started my cancer treatments and the day she had her, I was too sick from the chemo to go to the hospital like I normally would've. But during my treatment, she did call and check on me, but she never came over or wanted to see me. I told her I really wanted to see the baby and...
Asked by Elodia Lissard 1 year ago.
She had just had a baby when I started my cancer treatments and the day she had her, I was too sick from the chemo to go to the hospital like I normally would've. But during my treatment, she did call and check on me, but she never came over or wanted to see me. I told her I really wanted to see the baby and invited her over a few times when I was getting treatment, and a few times I asked what she was up to because I was feeling up to stopping by for a visit. Sometimes she would already have plans, sometimes she wouldn't call me back for a week. Well finally after my treatments were done, she asked me how long it would take for the radiation to leave my body. I told her that it never was "in my body", radiation is not contagious. I think she was thinking back to her grandpa who had radioactive seeds implanted for his prostate cancer and he couldn't be around kids or certain people. Anyways, I didn't have that, but she never bothered to ask me. Anyways, I am a little upset that she didn't just ask me about the radiation and that she avoided me during my cancer treatments, during a time that I would've really appreciated a little more support from her. Especially since she has been my "best friend" for over 10 years now. But I am not that upset about it. But my family, other friends and boyfriend think its really terrible and don't think I should talk to her anymore. I was venting to them about the fact that I was a little upset with her for avoiding me through this, but she admitted it to me and she felt bad about it. I don't feel like this should end a 10 year friendship. She was sincerely fearing for the safety of her baby. Would you continue a friendship with someone who did this? Or do you think I'm being stupid for staying friends with her? Because no matter what answers I get, I will still consider her a very good friend. Just wondering if my friends and fam are blowing this out of proportion or if I am being too nice. Idk. Thanks. Answered by Jettie Mainland 1 year ago.
"I don't feel like this should end a 10 year friendship. She was sincerely fearing for the safety of her baby." I think that statement says it all, really. Your friend didn't ask you because she never felt certain that you or the doctors could really guarantee there would not be a risk of exposure, and as you said, her grandfather had radioactive treatment which would have posed a risk. The maternal instinct is strong and I think you are right to forgive her. She has admitted that she felt bad about it - people don't admit they are wrong unless they are sincere. I have radioactive scans (octreoscan, gallium 68 PET) and must carry a doctor's letter in case I set off airport alarms. I avoid standing near people on public transport when I leave the hospital and I would miss a train, rather than risk exposing a child to radiation. Your friend would have heard stories like mine and would have avoided any risk to her child's health at all costs, even if it ment she neglected you. I hope if you explain this to your family and friends, that they will understand her valid fears and continue to support your friendship. After what you have endured, you do not need these negative emotions in your life. Peace be with you. Answered by Joni Cernansky 1 year ago.
I'm sure your feelings were hurt by her. But you do see that she was in the dark about radiation and scared of it. It's up to you if you want to remain friends with her or not. I can tell you how rude and stupid some people can be though. I was at a Eye Clinic and asked the doctor if I needed to wait on getting my eye's tested for a little while longer because I had just finished taking Radiation and Chemo and that doctor stepped back away from me when I said that, I felt so weird and kind of hurt my feelings that she did that to me. It just goes to show how ignorant some people are. Answered by Creola Redden 1 year ago.
Just by your words, you are a wonder to behold. No matter what, you will stick by her. I wish you were my best friend/ Honey, I'm so sorry for what you're going through. It just doesn't seem fair does it. Don't be upset over her insensitivity, you have a lot of support right her with those of us who went through it. Show her you are the better person You're not being stupid. She's just afraid of her mortality. The thought of dying has finally become real to her. Now she thinks she's the only one in the world and no one will understand. She needs a wake up call. Never abandoned people like that because she must be so lonely inside. Don't run up to her and hug her, just tell her you will always be there when she needs you. You are just a phone call away. You are a wonderful friend to have. Why anyone would treat you like that is beyond me because you sound so sweet. God bless you and take care of yourself first and foremost and remember, there are a lot of people on this forum that will talk you and support you always. Be blessed. Don't let one ruined friendship spoil it for those that will need you later on in life. God bless you friend. Answered by Sherrell Kube 1 year ago.
Yeah, what the 3 wise ones before me stated...AND, at your age, why do you feel the need to explain this situation to ANYONE? You are grown and you are not married, so what they think in this matter is moot. Omg S, I feel sooo bad for you! I NEVER got shunned, mistreated, or even told blah, blah, cancer, blah, blah, stronger, lol. It's not funny, but I am a very strong, stubborn person before and I still am. If I had gotten that reaction and treatment from my friends, they would've been picking themselves up off the floor! I was always the littlest, the youngest and the most quiet, so I had to learn to stand up for myself or be treated like a door mat my whole life. Answered by Tommy Krejsa 1 year ago.
There is a lot of ignorance out there. She honestly believed you could endanger her newborn. Her fear kept her from seeing you face to face where you could have explained more clearly. Is it worth destroying a 10 year friendship over fear and ignorance? She was probably hating that she couldn't show off her precious bundle to her best friend and has missed sharing all this with you. Answered by Delphine Kerman 1 year ago.
i wish i had the true "answer." i can tell you that the first time i had cancer, so many of my "best" friends abandoned me. why? i don't know -- but i have spoken to other survivors (i hate that word) who have experienced the same thing. i think it is some underlying thing they don't realize they are doing. i was told by my "best" friend that i would be too slow in doing something (we were antiquing in a huge field), she took up with my other 'good' friend and at the motel that night, they complained forever about how long it took to dry their hair (i was bald). i loved so much the "at least you don't have to shave your legs" line and, that too, came from some of my 'best' friends. my hair fell out (from the type of chemo) in one day (as they told me it would) and the next day, as i sat mortified (my, now x, husband was worthless in the empathy department), she JERKED my terry, cotton turbin off my head . . . "let's see how you look . . ." in a, "oh, you're a freak now" sort of way. the moral of this story? people are idiots when confronted with something that they can't explain. unfortunately, it comes at a time when you need them MOST. i lost my best friend (we stood up for each other in our weddings) and she dropped me too because i became too 'needy.' we used to speak on the phone every day, thumbing through the same magazines (i'm in tx, she's in ny) and she told people i "called her every day." put the emphasis on the right syllables and you can come out with so many different meanings. the question . . . keep her as a friend? you have to make that decision. i would love to say there is a way to 'educate' her -- but if she was that ignorent to begin with, you would be wasting your breath. i never asked for anything but moral support -- and everyone acted like i was taking advantage of them (including my husband). when i got it the second time, i decided to keep it secret from EVERYONE -- including my parents (my father is controling and i was suffereing from something he couldn't control . . . so he took it out on ME! go figure! you are going to have to decide how much this friendship means to you. i still sob over losing my friend and it's been 7 years (seems like ysterday). hopefully, eventually, she will realize how stupid she was and apologize -- and you are going to have to do your griping and GRIEVING with people that have suffered the same thing (like me). if i lived near you . . . i would love to speak to you. i have spoken to others that have suffered this same thing as well. i hate to say it, but you should probably keep her around. put articles of what she was afraid of out where she can see them, etc. be subtle -- don't let her take advantage of you in this state. you need support, not drama. i hate this for you. try to be strong. and slap the next person that tells you 'this makes you stronger . . ." blah, blah, blah . . . during cancer, the people around you act completely goofy. good luck. i hope i helped if only to let you know you are not the crazy one and that this occurs often - you are not crazy. Answered by Phylicia Aspinall 1 year ago.